Dementia Australia survey reveals lack of open discussion

Dementia is now Australia’s leading cause of death, yet seven in 10 Australians report that the condition is not discussed openly enough, according to a YouGov survey commissioned by Dementia Australia. Released during Dementia Action Week, which runs from September 21 to 27, the research reveals that more than half of respondents possess little to no knowledge about the disease. While most Australians are aware that dementia exists, only one in 10 state they know a lot about it.

The findings point to a distinct public conversation gap. Despite its deadly toll, dementia receives less public attention than skin cancer, mental health, and heart disease. Professor Tanya Buchanan, CEO of Dementia Australia, noted the broader societal impacts of this silence. When dementia stays out of the national conversation, the cost impacts more than the individual, leaving people alone when they need connection most, according to Professor Buchanan.

With close to half a million Australians living with dementia and case numbers climbing, Dementia Australia is pressing for a national dialogue to boost public understanding and reduce stigma. A related report published by the Australian Institute of Health and Welfare (AIHW) projects that the number of Australians living with the disease will surpass one million by 2065. In 2024, an estimated 425,000 Australians were living with dementia.

Social Consequences and Stigma

The YouGov survey uncovered significant social consequences for those affected. Eight in 10 respondents with personal connections to dementia reported experiencing or witnessing stigma, exclusion, disrespect, or unequal treatment. This included negative assumptions about their capabilities and outright exclusion from social activities. Professor Buchanan emphasized that open dialogue remains vital for dismantling these barriers and creating a more welcoming, inclusive dementia-friendly Australia.

Dementia Advocate Gina Callan, who lives with dementia, pointed out that initiating meaningful conversations does not require specialized expertise. Curiosity encourages conversations, Callan said, adding that asking questions, listening, and remaining open to different experiences help build mutual understanding.

Primary Care Integration and Modifiable Risk Factors

Dr Anthony Marinucci, Chair of RACGP Specific Interests Aged Care, described the findings as a call to action for the Federal Government to integrate brain health into primary care as part of a formalised care framework. Speaking to newsGP, Dr Marinucci stressed that general practitioners form the foundation of healthcare and need adequate time and funding to support patients through prevention, early intervention, and ongoing care. The AIHW report highlights that 43% of dementia cases are attributable to modifiable risk factors, including obesity, high blood sugar, and physical inactivity. Dr Marinucci stated that helping patients reduce these risk factors across their lifespan can meaningfully alter the trajectory of future diagnoses. For non-modifiable forms of dementia, early diagnosis and swift referral to specialist care—such as geriatricians, neurologists, occupational therapists, and physiotherapists—remain critical for improving patient outcomes. Although the Australian Government released its National Dementia Action Plan for 2024–34 in December 2024, clinicians emphasize that a structured clinical framework for early intervention is still required. Professor Buchanan reiterated that with aged care systems already strained and case numbers heading toward one million by 2065, federal funding for a national conversation on brain health cannot wait. Australians seeking support can contact the National Dementia Helpline at 1800 100 500 or visit dementia.org.au.