Trapped: The 8-Year Nightmare of a Woman Who Couldn’t Urinate

Woman diagnosed with Fowler’s Syndrome…Story of urine excretion with an ostomy bag

input 2024.10.29 06:30

input 2024.10.29 06:30correction 2024.10.28 13:46
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Tia Castle, 31, has suffered from a rare disease that has prevented her from urinating naturally for eight years. Left = Appearance with an ostomy bag / Bottom photo = Receiving surgery to remove the bladder and install an ostomy bag in 2022. [사진=영국 일간 더선 보도 갈무리]

The story of a woman who was unable to urinate naturally for eight years was told.

Tia Castle, 31, from Glasgow, Scotland, was unable to go to the bathroom for several days in 2016 and her stomach began to swell, so she rushed to the hospital. At the hospital, he was diagnosed with sepsis in the urinary tract due to 2 liters of water accumulating in the body. Tia had to use a catheter to drain urine every day for nine months and was diagnosed with Fowler syndrome in 2017.

Since childhood, Tia suffered from frequent urinary tract infections and kidney problems, and her right kidney had to be removed. I suffered from bladder spasms and loss of sensation, but the cause was unknown until I was diagnosed with Fowler syndrome. In 2016, after being admitted to the hospital with sepsis, Tia had to wear a permanent catheter, and the following year, she was diagnosed with Fowler syndrome, a rare disease.

In May 2022, Tia made the decision to have her bladder removed and fitted with a stoma. He said he is still fighting infections and that treatment is becoming more difficult due to antibiotic resistance, but thanks to this surgery, he is living a new life. Tia is supported by the Fowler Syndrome UK charity and is taking part in a vaccine clinical trial.

Through her story, Tia hopes to convey the message to others with Fowler syndrome that they are not alone. He said, “I have no bladder and only one kidney that is failing, but there are so many things I want to make and do. Through my story, I want to let other people with Fowler Syndrome know that they are not alone. There are many people suffering. I would be happy if I could help even one person. “For those who have an ostomy, remember there is nothing to be ashamed of!”

A rare bladder dysfunction that mainly occurs in women in their 20s and 30s… unable to urinate even if they want to.

Fowler syndrome is a rare bladder dysfunction first discovered in 1985 that mainly affects women. It is a disease that affects 2 out of 1 million women. It mainly affects young women in their 20s and 30s. It may be caused by experiences such as genital surgery or vaginal delivery, and the exact cause is not yet clear.

Even if you want to urinate, you may not be able to completely empty your bladder, or you may not be able to urinate at all. This causes residual urine, in which urine accumulates in the bladder and cannot be expelled. If urine remains in the bladder, it is easy for bacteria to multiply, which increases the risk of urinary tract infection or, in serious cases, sepsis. This syndrome appears to be caused by neuromuscular abnormalities, and in particular, when the bladder sphincter does not function normally, the muscles do not relax when the bladder tries to expel urine, making it difficult to do so.

If bladder dysfunction is suspected, the diagnosis can be made by evaluating intravesical pressure, urine flow, and sphincter function through tests. If residual urine volume is abnormally high, Fowler syndrome may be suspected.

Unfortunately, there is currently no cure and it is considered a chronic disease that is difficult to cure. Since it is impossible to urinate naturally, the most common method is to drain urine from the bladder through a catheter. Patients drain urine directly using a catheter several times a day.

Sacral nerve stimulation (SNS: Sacral Neuromodulation), which stimulates the bladder nerve to promote sphincter relaxation, is also attempted. This is a method that attempts to normalize the function of the nerves and muscles related to the bladder through nerve stimulation. In some severe cases, surgery may be necessary to completely remove the bladder or create a new passage for urine to drain (enterostomy).

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