Exploring Genetic Counseling: Insights on Genetic Testing and Privacy
- On November 20, MidPoint hosted a discussion about genetics and health featuring Dr.
- Cragun highlighted that clinical genetics testing, initiated by physicians, has become more widespread.
- Many listeners expressed a desire to know their complete genetic profiles.
Understanding Genetics and Health: Insights from Experts
On November 20, MidPoint hosted a discussion about genetics and health featuring Dr. Deborah Cragun and Professor Katherine Drabiak from the University of South Florida College of Public Health.
Dr. Cragun highlighted that clinical genetics testing, initiated by physicians, has become more widespread. This contrasts with commercial genetics testing offered by companies like 23 & Me and Ancestry.com. Medical genetics testing is protected by strict privacy laws, while commercial testing lacks the same level of protection. Dr. Cragun noted that the best use of genetic testing is in a medical context, where it can help diagnose health issues that may be treated medically or managed through lifestyle changes.
Many listeners expressed a desire to know their complete genetic profiles. Dr. Cragun pointed out that commercial tests can be very costly and may not be covered by insurance. In contrast, clinical testing is often affordable and insurance-covered, but patients must get referrals from doctors for specific tests.
Professor Drabiak explained that the health information from commercial testing companies is less protected. According to their Terms of Service, clients often lack control over who accesses their genetic information. There are concerns about the potential misuse of this data, as it could be shared with unauthorized entities. She advised readers to carefully review the Terms of Service before submitting their genetic information to these companies.
The full discussion is available for on-demand listening here or on the WMNF app and as a podcast.