hemophilia Patient in Argentina Faces crisis Due to Medication⁢ Shortage

General Roca, Argentina – A 21-year-old man with severe hemophilia is in a precarious situation after allegedly being deprived of his essential medication for over a month. Cecilia Bastías, the young man’s⁢ mother, has ⁢publicly voiced her concerns, stating that the delay by THE SOCIAL WORK⁤ OSCTCP (Social work of collective passenger transport drivers – UTA) is endangering her son’s life.

Life-Threatening Delay

According to Bastías,⁢ her son, Agus, has gone without his crucial medication ⁢for 37 days. This medication is⁢ vital in preventing spontaneous internal‍ bleeding,⁢ a ‍constant threat ⁢for individuals with severe hemophilia. The interruption⁢ in treatment has already led to ‍a new bleeding episode in his shoulder, causing him both physical pain and emotional distress.

“Today Agus is without medication again,with a shoulder pain,without attending classes,with risk⁣ of bleeding at any time …”, bastías ⁣said on social media last Friday.

bureaucracy and Lack of Response

The family claims to have completed all necessary orders and administrative procedures promptly. However, ⁤bureaucratic delays and a lack of concrete responses have left Agus in a vulnerable ⁤position. This past Friday, the family visited the OSCTCP headquarters in General Roca, seeking urgent answers.

“We are with Agus in the OSCTCP social work, waiting for answers that there is not yet, you should be injected medication that⁢ we ⁢do not have,” Bastías stated.

Failed Medication Procurement

Adding to the frustration, Bastías described an incident ⁤were the⁣ social work purportedly arranged to purchase the medication from a drugstore in Buenos aires, only⁢ to find it out of stock upon request.

“Obviously a mockery, total disaster; gentlemen, logic, coherence please. ⁣They could not ask before buying if they had medication for immediate delivery?” she questioned, highlighting the perceived inefficiency of the social work’s actions.

Treatment Regimen and costs

Agus was ⁤diagnosed with hemophilia at 3 months old and has since maintained a ‍prophylactic treatment regimen using Factor VIII Recombinant Speroct. He typically receives twice-weekly doses‍ of⁢ 3,000 units. In‍ the event of hemorrhagic episodes, the dosage is increased.

The medication costs 57 million pesos per month. Due to its status as an imported product from countries like Germany, France, or⁢ Spain, it must be acquired through⁢ social work organizations, drug stores, and laboratories.

The Urgency of Treatment

Hemophilia is a rare bleeding ⁣disorder‍ that necessitates specific treatments to replace the missing coagulation factor. Interrupting ⁤medication can lead to severe internal bleeding, joint damage, and‍ other life-threatening complications.

“Hemophilia does not expect,who make decisions in social works,please read,are not illiterate of such complex,unique and rare diseases,” Bastías emphasized.

Family’s Plea for Assistance

Bastías also pointed out the irony that contributions to the social work are ⁤consistently deducted, while⁣ the corresponding health⁢ services are not being adequately provided.⁢ “Every blessed months make discounts, there they do not‍ have any problem. I claim the right to life, to a fair treatment,” she stated.

With no resolution in sight, the family is ⁤appealing to the⁣ public‍ for help in raising awareness of their situation and⁣ reaching ‍the‍ appropriate authorities.Bastías clarified ⁤that they are not seeking financial donations but ‍rather a swift resolution to ensure her son’s access to his vital medication.

No Official Response

As of⁢ yet, the OSCTCP social work has not‍ released any public statements addressing the reasons for the delay or offering a concrete solution to the family. Agus’s health remains dependent on the prompt resumption of his medication supply.

“My ⁤Agus slept well, it ⁣is still with the ⁤effect of the dose that was placed yesterday … today without medication,” Bastías wrote in a recent social media post, expressing her growing anxiety about the potential worsening of ‍the situation.

Understanding Hemophilia

Hemophilia ⁣is ‍an inherited bleeding disorder in which the blood does not clot properly, leading to excessive bleeding. The two primary types ⁣are ⁤hemophilia A ⁢(factor VIII deficiency) and hemophilia B (factor IX deficiency). These factors⁣ are proteins essential for blood coagulation.

The condition ‍is caused by a mutation in one of the genes responsible for coding factors VIII or IX. Symptoms can include prolonged bleeding after injuries, bruising, pain and swelling in joints and other organs, and spontaneous bleeding.

Currently, there is no cure for hemophilia. However, available treatments can effectively manage the condition and prevent complications. Medical experts note⁢ that advancements in treatment have significantly increased the life expectancy of ⁤individuals with hemophilia.