A child who loses his sense of balance and bumps in various places while walking… The story of the diagnosis of a rare brainstem cancer and diffuse intrinsic glioma following MRI findings
Posted on 03.29.2024 16:23 Posted on 03.29.2024 16:23 Views 19
Aubrey, 7, kept bumping into furniture in the house and lost her balance while playing. Following MRI he was diagnosed with diffuse intrinsic glioma (DIPG). DIPG is a fatal brainstem tumor with a 5-year survival rate of only 1%. [사진=영국 일간 더선 보도 캡처]What if you have a child who keeps bumping into furniture or walls? There have been a few times when I thought I lost my balance while playing, but if it happens again, it would be a good idea to take my son to the hospital. In fact, a story was told where a rare brain tumor was discovered to be the reason a child kept bumping into things in the house while walking.
According to a recent article in the British newspaper The Sun, couple Andrew Lotary, 54, and Samantha Hibbert, 51, from Newton Abbot, Devon, England, noticed something strange when their 7-year-old son, Aubrey, started to bump into furniture in the house and lose balance.Thought about it. At first I thought it was simply due to growth and development, but when this continued to happen, I took my son to the hospital and had an MRI. Unfortunately, after an MRI on February 23, Aubrey’s family received shocking news. Aubrey was diagnosed with diffuse intrinsic glioma (DIPG).
DIPG is a type of brain tumor that affects 20 to 30 children in the UK each year. This is a rare disease with no clear boundaries in which the tumor infiltrates healthy brain tissue and spreads between brain cells. The 5-year survival rate is only 1%. Symptoms of tumors include facial asymmetry, lack of coordination, loss of control over some body movements, nausea, fatigue, headaches and seizures.
Aubrey was rushed to Bristol Children’s Hospital and is currently receiving radiotherapy and steroid treatment to stabilize her condition while longer-term treatment is considered. Aubrey’s parents said: “It’s been difficult because the diagnosis given to my son was so harsh and the prognosis was poor. The most important thing we have to hold on to right now is hope, so we’re focusing on staying positive.”
Before this cancer diagnosis, Aubrey always loved going out, playing on the trampoline and dancing. Now all I have to do is play with my friends for about 10 minutes, then relax and spend the day in bed.
The parents said they were considering treatment for Aubrey through a clinical trial, but because of the location and type of the tumor, they would have to undergo a biopsy to participate in the trial. The cost of this process is prohibitive, so Andrew and Samantha are working hard to raise money for Aubrey’s treatment and raise awareness of this rare disease. They are already aiming for 25,000 pounds (about 42.54 million won) and have currently raised more than 10,000 pounds (about 17 million won).
Aubrey’s father, Andrew, hasn’t given up hope, saying, “The survival rate for Aubrey’s brain tumor is very low, but that doesn’t mean Aubrey can’t survive.”
Brainstem cancer, which mostly affects children, is an incurable disease with a low survival rate.
DIPG is a type of brain tumor in which cancer cells mix with healthy cells and grow into other tissues. Brainstem cancer is a malignant tumor that occurs in the brainstem and is considered an incurable disease. Although its exact cause is unknown, it is the second most common high-grade primary brain tumor in children. It appears mainly in children between the ages of 5 and 7 and can cause vision problems, weakness of the facial muscles, weakness of the arms and legs, unstable balance and coordination, and difficulty walking and talking.
Because it is considered an incurable disease, fewer than 10 percent of children have been reported to survive two years after diagnosis. If contracted, it is very fatal, as it is practically impossible to remove the tumor without damaging healthy brain tissue. Treatment may include radiation therapy or steroids to help relieve pressure on the tumor. Clinical trials testing possible treatments are currently underway around the world.
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